folks thought I was nuts. Bottom line is, my daughter survived leukemia
at a time when the odds were a lot less favourable than they are now. And together the two of them inspired me to start this echo years ago.... :-)
Bottom line is, my daughter survived leukemia at a time
when the odds were a lot less favourable than they are now.
And together [she & Bernie Siegel] inspired me to start
this echo years ago.... :-)
It is great that you did and took the initiative to learn
as much as possible on the subject. Not all parents do
that. Our doctors have even pointed that out to us.
A good bit of the treatment is done at home with oral meds
that are time sensitive, have to be taken without food, etc,
things that as a parent, you need to be on top of.
I always want to know as much as possible about everything
and how everything works.
BTW, we get a two week break from treatments and then
start Interim Maintanence II possibly next week if counts
are good. That is the final phase before Maintanence,
when things should start getting more normal.
I expect so. Thinking of you, even if I'm slow to reply.... :-)
Very thankful to be finished with Interim Maintenance II
as of the Monday before Thanksgiving.
It was a bit more challenging than I had thought.
We start Maintenance on December 12th. Starts of with some
treatments, but at least after that, we are clear for 3 months
(other than a daily oral med - and another weekly one).
Will be very happy to see him start to have a normal life again.
Anyway, I hear you. Looking back... I gather you got this surprise
on April Fool's Day. I could tell you the exact date & time we got it
too. But I think what matters is that while you may not be out of the
woods yet things are looking up. In my experience most kids achieve remission within days. Not all are able to maintain it, but the longer
you & your loved ones hang in there the better the chances are that it
will be ancient history in a decade or two. :-)
Things have started to return to normal over here. I'm
still getting used to going back to our old "normal".
The Maintenance Phase lasts until around June of 2016. Mostly
just oral meds, but nothing that strong to make him sick.
All his hair is growing back already, too.
It was a crazy year last year, but I'm glad we keep moving
in the right direction.
From my standpoint she looked as cute as a bug's ear, and some
women Dallas & I knew were paying $100... twenty-five years ago... for haircuts like that. What's currently fashionable in suburbia &/or on Snob Hill takes awhile to trickle down to the common masses in Vancouver. I found it rather amusing, however, when our daughter achieved the same results as a side effect.... ;-)
What's currently fashionable in Suburbia &/or on Snob Hill
takes awhile to trickle down to the common masses in Vancouver.
I found it rather amusing, however, when our daughter achieved
the same results as a side effect.... ;-)
Same here. His hair looks really trendy with some areas spiking
Even though things have no been easy by any stretch,
I'm very pleased with how things are going.
The latest thing we found out yesterday, is he developed C.
Diff (from an antibiotic treatment for a sinus infection).
We just started on the Flagyl yesterday evening.
Can't wait until we don't have to give him any medicines. He is
so used to taking them, he doesn't remember not taking anything.
I can relate. Initially I felt as if I was up the creek without
a paddle... but I soon got over it, and our daughter is still alive &
[He] is on the "Standard Risk B-ALL". There is Induction,
Consolidation, Interim Maintenance I, Delayed Intensification,
Interim Maintenance II, and then Maintenance.
It sounded to me as if he might be getting more treatment in
the hospital, and less at home, than our daughter did. But I
remember one phase in which we had to go to the hospital every
day for a week or two.
We were going to the hospital once every 7 days. Right now,
it is once every 10 days. It varies - and there is a part where
it is every day for 4 days in a row - two weeks in a row.
With umpteen different drugs, each on a different schedule, I was
the only living person who had the drill committed to memory. But
just in case something unexpectedly happened to me, the oncologist
& I kept meticulous records of how these things were supposed to
be done. :-))
I have all the CureSeach papers that plot out everything by day.
Each week feels like a roller coaster. We go up (feel better) up
until treatment, and then it is back down.. Then back up again.
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